Patient Involvement – NIHR HRC in Paediatrics and Child Health

PATIENT INVOLVEMENT

OUR ETHOS

Ensuring the voices of children, young people, and their families remain at the centre of innovation is one of the founding principles of the NIHR HRC in Paediatrics and Child Health.

Patient and public involvement and engagement (PPIE) involves carrying out research ‘with’ or ‘by’ patients or members of the public, rather than carrying out research ‘about’ or ‘for’ patients or members of the public.

We believe that PPIE is fundamental to the successful development and delivery of technologies for child health.

The involvement of children, young people, and their families ensures that technology is developed for and with the user, adopted more rapidly, and better accepted into clinical practice.

Our ethos is to ensure that children, young people, and families are involved at every stage of the innovation pathway. We work closely with both local and national patient involvement groups.

RESOURCES

GENERATIONR

GenerationR is a group of 17 NIHR funded Young People Advisory Groups (YPAGs) based around the UK.

GENERATIONR

PUBLICATIONS

Our team’s peer-reviewed publications, including PPIE and co-design approaches.

PUBLICATIONS

TEAM

JEN PRESTON

PPIE EXECUTIVE LEAD

Jen Preston leads our PPI work. For 15 years, Jen’s main role has been to develop and implement a strategy for involving children, young people, parents, and carers in the design and delivery of paediatric research. Jen set up the first ever NIHR GenerationR YPAG in 2006 and currently co-ordinates the GenerationR Alliance.

DR GEMMA WHEELER

PROJECT MANAGER

Dr Gemma Wheeler is our Project Manager for Patient and Public Involvement and Engagement (PPIE) and the Child Health Technology conference. Prior to joining the team, Gemma worked as a Design Researcher at Lab4Living, Sheffield Hallam University, exploring how to foster meaningful, creative collaboration between diverse stakeholder groups in health research.

COLLABORATE

JOIN OUR MAILING LIST

CONNECT