Patient Involvement – NIHR HRC in Paediatrics and Child Health

PATIENT INVOLVEMENT

OUR ETHOS

Ensuring the voices of children, young people, and their families remain at the centre of innovation is one of the founding principles of the NIHR HRC in Paediatrics and Child Health.

Patient and public involvement and engagement (PPIE) involves carrying out research ‘with’ or ‘by’ patients or members of the public, rather than carrying out research ‘about’ or ‘for’ patients or members of the public.

We believe that PPIE is fundamental to the successful development and delivery of technologies for child health.

The involvement of children, young people, and their families ensures that technology is developed for and with the user, adopted more rapidly, and better accepted into clinical practice.

Our ethos is to ensure that children, young people, and families are involved at every stage of the innovation pathway. We work closely with both local and national patient involvement groups.

LATEST NEWS

Delivering NIHR Great Ormond Street Hospital for Children Biomedical Research Centre PhD Workshops

HRC News, PPIE

The NIHR HRC in Paediatrics and Child Health is an organisation dedicated to transforming the healthcare of young people living with a long-term health condition, and their families.

RESOURCES

OUR PPIE STRATEGY

Our PPIE strategy outlines our aims and objectives for working with children, young people, and their families.

DOWNLOAD PPIE STRATEGY

GENERATIONR

GenerationR is a group of 17 NIHR funded Young People Advisory Groups (YPAGs) based around the UK.

GENERATIONR

PUBLICATIONS

Our team’s peer-reviewed publications, including PPIE and co-design approaches.

PUBLICATIONS

TEAM

JEN PRESTON

PPIE EXECUTIVE LEAD

Jen Preston leads our PPI work. For 15 years, Jen’s main role has been to develop and implement a strategy for involving children, young people, parents, and carers in the design and delivery of paediatric research. Jen set up the first ever NIHR GenerationR YPAG in 2006 and currently co-ordinates the GenerationR Alliance.

DR GEMMA WHEELER

SENIOR PROJECT MANAGER

Dr Gemma Wheeler is our Senior Project Manager, overseeing our Patient and Public Involvement and Engagement (PPIE) and PhD programmes. Prior to joining the team, Gemma worked as a Design Researcher at Lab4Living, Sheffield Hallam University, exploring how to foster meaningful, creative collaboration between diverse stakeholder groups in health research.

Delivering NIHR Great Ormond Street Hospital for Children Biomedical Research Centre PhD Workshops

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