Long-Term Conditions – NIHR HRC in Paediatrics and Child Health

THEME

LONG-TERM CONDITIONS IN CHILDHOOD

THE NEED

Young people in the UK are more likely to die from asthma, be obese or overweight, or have a poor quality of life from long-term conditions, such as type 1 diabetes, than are most young people in similar countries.

Importantly, recent high-profile cases of deaths associated with mould, damp, and air pollution have brought this to the attention of local authority services and the wider public. However, resources to address the scale of the problem are scarce.

Children with long-term conditions are also at a greater risk of mental health problems, particularly around the time of diagnosis.

FOCUS

The Long-Term Conditions in Childhood theme aims to address multiple national agendas, including:

NHS Long-Term Plan
Air Pollution and Healthy Homes
England Rare Diseases Action Plan
RCPCH Epilepsy12 Audit
Core20PLUS5 for Children and Young People

This theme focuses on three areas:

Early detection and diagnosis, including addressing health inequalities, developing remote technologies, and utilising artificial intelligence and machine learning.
Monitoring and self-management, specifically aiming to address the NHS net zero and sustainability agendas.
Prevention and education, with a focus on three of the key national priorities: childhood obesity, mental health, and sleep.

CASE STUDIES

Co-design of software to obtain audio from children following ‘999’ and ‘111’ calls

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Immersive virtual reality to improve physiotherapy care of duchenne muscular dystrophy patients

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Materials development and pilot evaluation of 3D-printed custom-made non-invasive ventilation mask

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TEAM

PROF HEATHER ELPHICK

THEME LEAD

Professor Heather Elphick is a Consultant in Paediatric Respiratory and Sleep Medicine and lead consultant for the respiratory service at Sheffield Children’s NHS Foundation Trust. Heather’s main clinical interests are sleep medicine and long-term ventilation.

PROF HELEN CROSS

DEPUTY THEME LEAD

Professor Helen Cross is the Prince of Wales’s Chair of Childhood Epilepsy and Honorary Consultant in Paediatric Neurology at the University College London Institute of Child Health, Great Ormond Street Hospital (GOSH) for Children, and Young Epilepsy, Lingfield. Helen developed the epilepsy surgery unit at GOSH for Children and is currently Clinical Advisor to the National Children’s Epilepsy Surgery Service. Helen’s main research interest is the early intervention and improvement of outcomes in children with complex epilepsy.

DR LARISSA KERECUK

DEPUTY THEME LEAD

Dr Larissa Kerecuk is a Consultant Paediatric Nephrologist and Rare Diseases lead at Birmingham Children’s Hospital, where the world’s first Paediatric Rare Disease Clinical Centre opened in 2017. Larissa is also the NIHR specialty lead for the West Midlands Clinical Research Network, lead for 100,000 Genome Project at Birmingham Children’s, and a member of the Management Committee of Rare Disease UK.

JACOB BRANCHFLOWER

PROJECT MANAGER

Jacob Branchflower is our Project Manager for the Long-Term Conditions in Childhood and Transition themes. Jacob also leads on our collaboration requests and managing external enquiries. Prior to joining the team, Jacob worked at the European Patent Office, performing examination of patent applications for novel innovations in the healthcare, biotechnology, and chemistry sectors.

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