This webinar is hosted by EPTRI and will focus on the application of FAIR principles (Findable, Accessible, Interoperable, Reusable) to paediatric health data, with particular attention to rare diseases.

Many paediatric research projects face difficulties in managing, sharing, and reusing data due to the limited availability of specific use cases and complex ethical and regulatory constraints. The webinar will provide an accessible introduction to FAIRification and data verification and move from the general FAIRification and verification process to concrete examples of implementation both in paediatric and rare disease research. It will also address ethical, regulatory and practical aspects, including resources, costs and potential benefits of FAIRified and verified data.